NIS LIAISE BMN 111-501, Achondroplasia Quality of Life
Projektleiter:
apl. Prof. Dr. Klaus Mohnike , Karola Zenker
Projekthomepage:
Finanzierung:
Industrie;
Multinational, epidemiological, observational, retrospective, cross-sectional study of individuals with achondroplasia (subjects).
Study Objectives
The objectives of the study are to describe the impact on the following in individuals with achondroplasia:
• Quality of life (QoL)
• Clinical burden (functional impact, comorbidities, complications, medical and surgical care)
• Healthcare resource use
• Socio-economic burden (educational, personal, employment and financial impact)
• Psychosocial burden (psychological and socialisation impact)
Study Objectives
The objectives of the study are to describe the impact on the following in individuals with achondroplasia:
• Quality of life (QoL)
• Clinical burden (functional impact, comorbidities, complications, medical and surgical care)
• Healthcare resource use
• Socio-economic burden (educational, personal, employment and financial impact)
• Psychosocial burden (psychological and socialisation impact)
Anmerkungen
NCT03449368
Kontakt
apl. Prof. Dr. Klaus Mohnike
Otto-von-Guericke-Universität Magdeburg
Leipziger Str. 44
39120
Magdeburg
Tel.:+49 391 6724000
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